At first I thought it must be two bugs mating, but no, that is one long, scary looking dude. Has anyone ever seen a bug like this before, other than on some Discovery Nature show deep within the Amazon??
Monday, November 15, 2010
Seriously, WTF?!?!?
At first I thought it must be two bugs mating, but no, that is one long, scary looking dude. Has anyone ever seen a bug like this before, other than on some Discovery Nature show deep within the Amazon??
Saturday, November 13, 2010
Queer Eye for the Pilgrims
Thursday, November 11, 2010
The Card
After staring at it a few seconds longer, I whipped it open and completely ignored the skill descriptions but went straight to the first 'grade' lines that were neatly filled with mostly D's and some B's. "Holy F*%k!" I thought, "my kid is failing Kindergarten." Of course he wasn't, since the B's and D's didn't actually mean he was getting B's and D's but were rather symbols for a far kinder grading system. I quickly scanned the report card and found the legend on the back. The B's meant that he was beginning to develop a skill. The D's meant that he had developed the skill but occasionally might need some reminders or help and S's meant that he had secured the skill.
My panic subsided a bit and I went back and read through everything. He got mostly S's in social behaviors (he gets that from me) got D's in reading and math skills (I perhaps can give Raif credit for those) and B's in fine motor skills. The fine motor wasn't a shock because a) I never got anything above a NI (needs improvement) in handwriting and most of the time scored the ever popular U (unsatisfactory) when it came to my elementary penmanship. And b) his neurologist told us that he would more than likely have motor skill issues (both fine and gross) from his NICU brain bleed. So all in all, it was a pretty good report card, I suppose. I mean if he was getting S's in everything his first quarter in Kindergarten then he probably shouldn't be in Kindergarten, right??
But then I started to analyze the card more and more. When we looked at schools about this time last year one of our main criteria was to put Greyson in a non-competitive school. One of our main draws to BGA was the warm and friendly family atmosphere. We had several people tell us that it was the most nurturing private school around and if we wanted something competitive this was not the place to send our kids. OK, so here it is - my touchy feel-y, non-competitive report card. This is what I wanted, right? Apparently not. OK, so he is developing his spelling skills. Good for him but where is everyone else in his class related to him? Are all the other parents looking at report cards chocked full of S's?? I am an accountant by trade - I deal with numbers, concrete answers, right and wrong. I wanted a report card filled with A's, B's and C's. I can relate to those, understand how he is doing, determine where his weaknesses are. I wanted something, anything that told me he was in line with his peers. What I got was a warm fuzzy report card that was starting to feel anything but warm and fuzzy.
Of course, as happens with most emotional traumas that befall me, Raif was out of town. I called him on the phone.
"We got Greyson's report card, today."
"Oh great, how did he do?"
"Well let me read it to you."
"Sweetie, I have got 5 minutes until my next meeting, can this wait til I get home?"
"Sure." (Of course what I was really saying in my head was "NO IT CAN'T")
And so I waited an excruciating 24 hours until my husband FINALLY arrived home. I presented it to him as soon as he walked in the door, before he could put his suitcase down or kiss his kids hello.
"So what do you think."
He gave it a cursory glance, nodded his approval, said "Looks good" and handed it back to me.
"That's it???? This is his FIRST report card EVER!!! Don't you think we should sit down and discuss it, dissect it. Isn't that what we are suppose to do?"
"Babe, it is a Kindergarten report card. I think you need a little perspective."
OK, clearly he was right but that didn't stop me. So after we put the kids to bed I forced him to sit at the kitchen table (because family matters should always be discussed at the kitchen table) and look over it again and I pretty much got the same declaration. "Looks, good to me."
But I just couldn't let it go. I felt very 'grown-up' discussing my child's report card. You know, like those random moments you have in parenting when you are hit with the importance and monumental weight of raising another human being. My racing mind didn't quite make it to "If he gets a bad Kindergarten report card he will never get into the right college" but I will admit it came close. Raif amused me for a couple of minutes but rapidly grew tired of the conversation.
"What if we went over it with him tomorrow and talked to him about what it means? Would that help??"
We did and it did help, a little. But the moral of this whole story is, I guess I am a little more competitive when it comes to my children then I thought. This might not surprise some of you but it actually did surprise me. I have tried to take a step back and I resisted the urge to write his teacher and ask for his class rank.
"Hello, my name is Michele and I am a grade junkie."
Admitting your addiction is the first step, right?
Saturday, November 6, 2010
Fall Fun on a Farm
One of the other things that we love about our small, private school is the flexibility in which they operate. A couple of weeks ago, Connor's grandparents (another Kindergartener) invited all the kids and their parents to a Fall Fun on the Farm Day. And so we spent last Monday running around the Clark's farm just south of Nashville. Maybe I am wrong but I just can't imagine a public school allowing their kids to spend the day at the farm like that without having to go through mounds and mounds of red tape. We fished, played on hay bales, had a wienie roast and made s'mores and had a hayride with the children taking turns going into a tractor's scoop (and I know that they would never allow that in a public school). It was a day where the kids could just be kids, which is something that all schools need to do once in awhile.
Thursday, November 4, 2010
Going Home Again
Thanks to all of our friends who took time out of their busy schedules to stop by and say hello. We miss y'all so much...come and visit us...please!!!
Wednesday, November 3, 2010
November's VIP
After a year and a half of trying to have a baby, we thought the pregnancy would be the easy part. Then we learned we were having twins, and normal pregnancy simply wasn’t meant to be. At 18 weeks, one of the amniotic sacs ruptured and a week later our first son was stillborn. Doctors told us it was virtually impossible to deliver only one child, they gave us a 1 in 1,000 chance, but Greyson was stubborn. He hung in another 6 weeks before he decided he simply couldn’t wait any longer. Our beautiful boy was born on July 25th at 26 weeks, 5 days with a fighting weight of 2 pounds, 4 ounces.
His first month of life went spectacularly well and relatively uneventfully. He was never on a ventilator, barely spent two weeks on a CPAP machine and was then placed on nasal canulas. He was even moved out of the NICU and into the “feed and grow” section of the Special Care Nursery. He was doing great on feeds and marching full force ahead as only a real fighter could.
But as everyone who has ever had a child in the NICU can tell you, things can change in a heartbeat. On August 25th, when he was exactly one month old, our phone rang at about 2:00 in the morning, with news that no NICU parent ever wants to hear – something was wrong, and they were running some tests. They’d call us back. A painfully long hour later, we received a second call: Greyson has NEC, they told us. We don’t think he will make it. You need to come in and say goodbye.
Some moments of that night are crystal clear to me – speeding down I-285 at 95 mph, holding my husband’s hand, riding up the elevator with the Scottish Rite transport team, seeing a ghostly white Greyson for the first time with what seemed like 100 nurses and doctors surrounding him with a swollen, bloated belly, the sound of the sirens on the ambulance ride over to Scottish Rite. Other moments, like our talk with the surgeon, I know happened, but I couldn’t tell you a single word that was exchanged.
Finally as the sun was coming up, we finally got good news. The NEC wasn’t as bad as they initially thought. They had to remove only a small portion of his intestines and at that point he was stable. They had performed an ileostomy and only time would tell how he responded.
The weeks after that were difficult and tenuous. When someone outside the NICU world tells you that they’ve been on an emotional roller coaster, you can rest assured, they have no idea what that really means. Greyson was intubated after surgery; when they took him off the ventilator, the pressures caused his lung to collapse and he spent several minutes without oxygen as they tried to repair the damage: surgery #2 – put a chest tube in. He battled more cases of pneumonia then I care to remember and a blood clot formed at the entry point of one of his PICC lines and ended up breaking off and strangling one of his kidneys, rendering it useless. Very slowly, however, the good days began to outnumber the bad and finally after 4 surgeries and 4 months he came home on December 1st.
Life at home with a preemie presents its own challenges. Greyson came home with a PEG tube for feeding, an apnea monitor that makes the most ear piercing sound you’ve ever heard in your life, 4 different medications including shots that had to be administered (taken of course at different times of day so we had to have a chart on the fridge to keep track) and 6 different specialists/therapists to visit.
He got his feeding tube out that next February and very slowly, as the months and years went by, we starting crossing off specialists and therapists one at a time. Today he is a vibrant, energetic, playful and often times stubborn 5 year old boy who loves to build LEGOS, draw, color, and play hockey at any opportunity. Other than the scar across his belly you would never know that the beginning of his life was anything but ordinary. He only sees one of his specialists, his nephrologist, who monitors his remaining kidney and will do so probably the rest of his life. He is in the 50th percentile in weight and height, something I didn’t even dream about 3 years ago (who knew average could be so spectacular). He started kindergarten this fall and is doing extremely well in reading and math. He is, in fact extraordinary in every way.
We couldn’t be prouder of all the things he has overcome and persevered through in his short life. We also wouldn’t have survived our time in the NICU if it wasn’t for the support we got from PPP. Our Thursday meetings were what got us through each week. Being able to sit down each week and talk with other parents who understood terms like CPAP, NEC, and BPD was a life saver. The support we received, and the lifelong friends we have met is invaluable to our family. Thanks to everyone at PPP for all you do!!




